Today started early but the blog didn’t. I had a 7:15 a.m. appointment with my neurosurgeon today. More tests are coming to figure out some pesky rib pain. They are so thorough, they read the entire story of me from my chart before they talked to me. I imagine they started early! The history of my spine issues began in 1995, when both I and my neuro guy were young. How great they look at the whole picture, since it is a story where one thing has deteriorated after another, so they need to know the whole thing. I love that. This is not the neuro who did my surgery.
The thought is the ribs are affected by the scoliosis that has developed over the past 25 years. They may be pinching nerves by now. An MRI will tell. Thank goodness for the miracle of diagnostic testing; IF your insurance company approves. C’mon, Aetna! I’ve got a lot to do! I’d like to be a little more comfortable.
While waiting for the x-ray at the surgical hospital complex (this group of doctors owns the whole complex), I was reading Michael J. Fox’s newest book, “No Time Like The Future.” I became very lost in his story.
His description of what the Parkinson’s feels like to his body is amazing. He talks of the amount of planning and execution necessary to walk from his office, make a right turn, another right turn, and a third is masterful. His description of the way his therapy may help him become a multi-tasker again is handled with such grace. My admiration of his fight and positive attitude has multiplied a thousand fold. The chapter, “What to Expect From My Back In The Future,” is so well done. His sense of humor has never wavered. His description of the tumor in his spine caused my mind to flash back to the discovery of my spine tumor. Mine was an arachanoid cyst, his was an ependyoma cyst.
Like mine, his reared it’s ugly head and there was huge risk if surgery was done or not. Either way is a crap shoot. Mine was entwined around the spinal cord, his was right down in the fibers or the spinal cord, and required delicate 5 hour surgery. Mine was an 8 hour surgery. The next day, my face looked like a cabbage patch doll. From lying on my stomach for eight hours and more, the fluids all pooled around my face, which was the lowest point for all those hours.
I was surprised at how emotional I felt while reading this part of the book. I thought it was “handled,” I thought since it was so far back in my life it wouldn’t affect me, but it did. I have often thought how lucky I was paralysis didn’t become my life; I’m even luckier today to still be moving independently. About every five years, I can tell there has been substantial loss of ability and movement with ease. It’s the way it is. I am confident the keen eye and steady hand of the doctors I have will keep me going for a long time. Michael J. Fox may not have that luxury, with his PD advancing so much.
I will read the rest of his story with gratitude, I will pray for him all the way. He has done so much for people with PD, and has done it with grace and humor. He is grateful to his wife for her upbeat attitude when his isn’t. They have had a family while fighting this battle; they have done good for the world while in the trenches. I salute them both, and their children, who are now adults.
While we relax tonight and plan for another day, be kind to your people. Be grateful for your good health. I’m glad the Babe and I started the Keto Diet in November. I’ve lost a little more than twenty pounds, and so has the Babe. Slower than we would have liked, but we’re still having progress. It will help us as we continue aging.
Be Kind, Let’s not argue about who did what in Washington, it will rile up your blood pressure. That’s bad for your health, and arguing only makes it worse. Goading people into arguing is ridiculous. Bad language is not the way. There is plenty of blame to pass around, and many people are guilty of very bad, reprehensible behavior. Pray for our great country. I want her to continue for another two hundred plus years. Let’s help her get there. We are American’s first. Let’s concentrate on that.